{"id":35301,"date":"2023-03-16T16:07:17","date_gmt":"2023-03-16T16:07:17","guid":{"rendered":"https:\/\/fairlife.catalyticademo.com\/?p=35301"},"modified":"2023-11-14T15:13:44","modified_gmt":"2023-11-14T15:13:44","slug":"i-feel-ive-wasted-so-many-years-of-my-life-living-in-fear","status":"publish","type":"post","link":"https:\/\/fairlife-app.catalyticademo.com\/en\/i-feel-ive-wasted-so-many-years-of-my-life-living-in-fear\/","title":{"rendered":"I feel I&#8217;ve wasted so many years of my life, living in fear."},"content":{"rendered":"<p style=\"text-align: right;\">By Francesca Karmiri, 45 years old, patient<\/p>\n<p>\u00a0I have been used to living with cancer for many years now.\u00a0 When I was 20, my father was diagnosed with lung cancer in a routine check-up. He was 65 back then. Things got even more painful, as my young niece &#8220;passed away&#8221;, after been diagnosed with osteosarcoma which led to lung metastasis.<\/p>\n<p>In 2018, my mother was diagnosed with stage IV lung cancer. Hope was pretty limited. According to doctors, she only had 10-15 more months to live. Five years have passed, my mother is still with us and that to me is <strong>the loudest message of hope.<\/strong><\/p>\n<p>Around the same time as my mother&#8217;s diagnosis, I started having breathing difficulties. I felt short of breath and after a CT scan, I was diagnosed with eosinophilia in my lungs. I immediately started immunotherapy and the symptoms stopped. I could breathe better. Naturally, I developed cardiac arrhythmias and atrial fibrillation, due to this condition.. But I am often on oxygen, I continue immunotherapy and cortisone treatment, according to medical instructions.<\/p>\n<p>I am trying to cope. But it is too hard. Some years ago, I felt like I wanted to quit living. How can you live when you can&#8217;t breathe? How can you enjoy your family, your friends?<\/p>\n<p>I&#8217;ve been living with this disease for several years. Just like my mother. It&#8217;s not easy but I hope the best is yet to come.\u00a0 Treatments have side effects, but I feel like I have more physical and emotional energy than the years before. <strong>I receive psychological support, which I find essential in navigating through lung cancer. I met FairLife L.C.C.&#8217;s team and I really appreciate the work they do alongside patients and caregivers, living with lung cancer.<\/strong><\/p>\n<p>Sure, there are moments, when I feel overwhelmed by fear. Especially, when I have upcoming checkups. I am terrified. I&#8217;ve been living with fear for so long. I feel I&#8217;ve wasted so many years of my life.<\/p>\n<p>I&#8217;ve been a heavy smoker and so was my mother. But I was determined to quit and so I did.\u00a0 Besides, it was impossible to smoke, as every cigarette literally took my breath away. I imposed it on my mother too and now she is feeling so much better.<\/p>\n<p><strong>And yes, I have felt the lung cancer stigma,<\/strong> associated with smoking. I remember every disapproving glance, every word implying: &#8220;You asked for it!&#8221; I remember everything.<\/p>\n<p>And I know, I&#8217;m responsible too. I know it better than anyone.<\/p>\n<p>But I wish to leave it behind. I don&#8217;t want to answer for something I did in the past.<\/p>\n<p><strong>I&#8217;ve learned my lesson and I want to move forward. Enough with the stigma!<\/strong><\/p>\n<p style=\"text-align: right;\">\u00a0 March 14, 2023<\/p>\n","protected":false},"excerpt":{"rendered":"<p>By Francesca Karmiri, 45 years old, patient \u00a0I have been used to living with cancer for many years now.\u00a0 When I was 20, my father&#8230;<\/p>\n","protected":false},"author":1,"featured_media":33088,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[95],"tags":[],"class_list":["post-35301","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","category-95","description-off"],"acf":[],"_links":{"self":[{"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/posts\/35301","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/comments?post=35301"}],"version-history":[{"count":0,"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/posts\/35301\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/media\/33088"}],"wp:attachment":[{"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/media?parent=35301"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/categories?post=35301"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/fairlife-app.catalyticademo.com\/en\/wp-json\/wp\/v2\/tags?post=35301"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}